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Topic: Fibromyalgia and still having a life?!  (Read 4049 times)

y2kpeaches

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Fibromyalgia and still having a life?!
« on: November 28, 2015, 03:14:49 am »
 :highfive: I'd like to start a current and constant running post about persons living with and/or dealing with fibromyalgia daily.  I will come back at least weekly, if not sooner,  and see how its moving along.  I'd like to know how u feel,  how u deal with the 24/7 pain,  tell me its driving u crazy (I'd be disappointed if u didn't feel that way from time to time), what meds u take,  what vitamins/minerals,  what treatments. ..etc. ..I will share mine as well. It has only be 6 years but I can't remember the last day I woke pain free or lived a normal life,  with no constant pain I mean.  I have been on so many different meds and suppliments but have really found nothing constant since there seems to be changes daily.  Well enough of me on this post.  Ur turn 😆
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y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #1 on: November 29, 2015, 05:43:48 am »
I hope I added this topic/blog correctly!  😕 Of course its only been 1 day. Really though I would love to hear from all that live with fibromyalgia or u live with someone who does.
Today was an OK day for me,  I wasn't able to do much until late in the evening but I fixed supper for all (had to be creative too,  low on groceries until the 30th). Also had to wash 2 loads of Thanksgiving dishes since I guess everyone figured they didn't have to,  ugh. 
I only took 2 aleve and 1 l-lysine. I'm only going to take 2 more aleve in a few moments since I can't seem to get to bed before 6 or 7 am.  I'm working on getting added to my son's military coverage and care since I'm unable to work on a constant. ...OK enough complaining. ..gotta change my phone battery.  Please someone comment so I know I'm not alone here ☺
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sdenimandlace1

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Re: Fibromyalgia and still having a life?!
« Reply #2 on: November 29, 2015, 06:52:18 am »
my daughter has it, and has found if she takes turmeric and gluten it helps with the pain.

y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #3 on: November 29, 2015, 07:08:35 am »
my daughter has it, and has found if she takes turmeric and gluten it helps with the pain.

I did try that for 2 weeks now but today I chose to try the day without it,  it seem to handle the pain better. I will try to go without it again today and see how it works. Thanks u so much for replying.
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y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #4 on: December 01, 2015, 12:25:14 am »
So it was my 2nd day without the turmeric and gluten and I felt no different.  I will try the rest of a 7 day period and then start them back.  I really want to see if it is helping me 😆 It was a hard day.  No sleep all last night,  up early to watch grand daughter,  did more dish and my poor daughter in law got a grip fest regarding the kids having no responsibilities but expecting to be owned the world. Yep I'm that kind of mom,  even if ur not my kiddo lol Its 1020 pm now, hope I can sleep tonight. A day in a fibromyalgia's life lol Hope everyone else is good! Or laughing at it as much as u can 😆
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y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #5 on: December 04, 2015, 10:04:36 pm »
Still no turmeric and gluten and it has been the normal up and downs  with pain tolerance.  I can't wait to test my theory and see if it really does anything. The omega3 really did nothing for the pains of fibromyalgia but I was taking to help my cholesterol anyways so I didn't waste my much needed money.
I do know for a fact yoga and light exercise helps tremendously however u have to be careful of the amount,  it's better to do to little then to much cause that will leave u in so much pain for days and even more painful,  sleepless nights!
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reiddb

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Re: Fibromyalgia and still having a life?!
« Reply #6 on: December 04, 2015, 10:35:53 pm »
I've heard of some natural ways to help, homeopathic stuff but couldn't tell you what....look into it. I'm so sorry to hear!

y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #7 on: December 07, 2015, 05:01:57 am »
Well I started my Turmeric Curcumin, 1000 mg, to see if I notice help with this awful feeling with FM. I have researched as much as I can do I taken after my evening meal, directions say with meat. I hope it's more protein since I prefer less meat products.  I also have restless nights and jerking pain. I'm hoping to start feeling some relief soon!
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sdenimandlace1

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Re: Fibromyalgia and still having a life?!
« Reply #8 on: December 07, 2015, 06:09:13 am »
I'm sorry I intend to say no gluten.   Look and some Essential oils also for the pain.  You could also try the epsom salt  bath to help with the pain.

y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #9 on: December 07, 2015, 06:28:22 am »
I'm sorry I intend to say no gluten.   Look and some Essential oils also for the pain.  You could also try the epsom salt  bath to help with the pain.


I appreciate any advise.  Everyone is different so some options to try are great to know. I haven't tried the essential oils,  something I will consider.
The hot/warm baths are good but it seems to be more torture getting in and out of the tub lol but I do love them 😆
Thanks again!
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blessedwith3boys

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Re: Fibromyalgia and still having a life?!
« Reply #10 on: December 07, 2015, 07:51:16 am »
Have you ever heard of making sort of a like heating pad only out of rice and you can stick it in the microwave to warm it up and use it whenever you hurt? I believe you can even add essential oil to it but don't quote me on that.

y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #11 on: December 07, 2015, 09:28:18 am »
Have you ever heard of making sort of a like heating pad only out of rice and you can stick it in the microwave to warm it up and use it whenever you hurt? I believe you can even add essential oil to it but don't quote me on that.

I've heard of and made the heating pads but never thought to add essential oils. When I have more funds to work with I will try that.  I'm not big on heat on my sore spots, I normally opt for ice,  however when I can I'm going to try making a few large heating pads and pop them on several areas 😆
Thanks for bringing that to my attention.  I hate that I forget about some things since they didn't help the first time I tried it.
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6265AT99

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Re: Fibromyalgia and still having a life?!
« Reply #12 on: December 07, 2015, 10:33:29 am »
I'd like to know how your fibromyalgia started cause I have constant pain in my shoulders (sometimes both and sometimes only one) but my doctor says "there's nothing wrong" yet I don't have a day go by that I'm not in pain.  I also get pain in my knees and hands.

debidoo

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Re: Fibromyalgia and still having a life?!
« Reply #13 on: December 07, 2015, 01:09:37 pm »
I have not been diagnosed with fibromyalgia but I have been diagnosed with chronic pain.  I seem to have most of the symptoms but I have so much orthopedic issues from childhood scoliosis that everything gets attributed to that but it doesn't matter which it is because I am in misery 24 hours per day.  I am going to therapy - rehabilitation right now and I hope no matter what it will help my mobility.

y2kpeaches

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Re: Fibromyalgia and still having a life?!
« Reply #14 on: December 09, 2015, 11:27:11 am »
I have not been diagnosed with fibromyalgia but I have been diagnosed with chronic pain.  I seem to have most of the symptoms but I have so much orthopedic issues from childhood scoliosis that everything gets attributed to that but it doesn't matter which it is because I am in misery 24 hours per day.  I am going to therapy - rehabilitation right now and I hope no matter what it will help my mobility.

Thank u for commenting!
I hate that anyone would have to even deal with a minut of this.  I am glad ur actively doing something. I hope that someday a diagnosis for the cause is found to prevent it, since the medicines do very little.  I do so hate the pain of yoga but it does help. I wish the best and keep us updated on how therapy goes.
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