Fibromyalgia and still having a life?!

[y2kpeaches]

So dingy I am, last night I read more of the label for the Turmeric Curcumin I purchase and see I have not been taking enough!  I hope this is true because today I doubled it and hope to have some relief and it will help me get back into some activity...ie housework at least lol.  Many wishes for less pain to everyone out there!

[y2kpeaches]

I'd like to know how your fibromyalgia started cause I have constant pain in my shoulders (sometimes both and sometimes only one) but my doctor says "there's nothing wrong" yet I don't have a day go by that I'm not in pain.  I also get pain in my knees and hands.

Thanks for ur time, hope this helps.
Mine started in a very strange way,  from what I researched. 
To start iI had carpal tunnel laser surgery on both wrist, cubital tunnel surgery on one elbow with a rotator tear on that shoulder (no surgery) back in the mid to late '90s. I thought I was just having more complications due to my job/work.
I also had a rash on the bottom of my foot (adventually spreading to the other and sparatically all over my body,  even a tiny, single bump came up in the palm of just one hand), where we should have no rashes.  My doctor tried a few things,  one being steroids. Ugh,  I put on 10 lbs in a month.  I didn't know they would make me want to eat everything in the house. I only heard it could make u sterile but at age 41-42 I wasn't worried about that.
Any who after no results my doctor referred me to a rheumatologist. After many test and and still lots of aches & pains in major joints all over my body along with a 24/7 steady nerve jerking/burning I was finally diagnosed. I fought it until I researched it and remembered my Mom dealing with a lot of the same symptoms before she past in '95. I was denied disability 2 times and need to apply again now that Social Security recognizes it as a disability since only 2011-2012'ish, of course after my denial.  Go figure. 
It's a lot of work still ahead of me but being unable to keep a set schedule of sleep and energy. I do wish I had a guide to follow lol
Well that's the biggest jist of my story.  I hope it helps. 
Please keep a daily diary and note anything going on to reveal all to ur doctor.  I have a hard time remembering everything so the diary helps. It might provide ur doctor with the full info to correctly diagnosis.  The big problem is its unknown how it comes to affect a person and there is no test,  just elilmination of other ailments,with test. The reason I fought it so hard.
Thanks for reading and posting!

[y2kpeaches]

Oh... I found that ice helps me. I haven't tried heat in a long time, didn't help as much as ice.  So if u don't see results with heat try an ice pack or two.
I just used a good sized one and moved it around after getting to cold lol But it worked some magic 😆

[JaniceSW]

I'm sorry you have this condition.  I know some people have its symptoms more than others and it can come and go becoming more acute at times.  Although I don't have fibromyalgia, I have increasing osteoarthritis throughout my body so I know about moderate pain and stiffness.  I have it in my hands, knees, some in my hips and feet.  After I sit for a period of time or get up in the morning, I sometimes move like a little old lady 30 years older than what I am for a while.  I also have better days than others.

Don't quit exercising entirely.  Try mild, moderate movements.  Walk a little, use low weights (like maybe only 1 or 2 pounds).  Use a few repetitions, a little here and there throughout the day. It is true...if you don't use it, you lose it.  Joints become stiffer and muscles lose mass which only makes movement more difficult.  Easy does it, but don't give up on exercise entirely. Use a little heat before, a little ice afterward if necessary.  Heat brings blood to an area and gets it ready to move.  (I am a trained Occupational Therapist.)

[dogsleash]

I do not have it but my roommate does. she lives every day in pain. She is unable to take medicine for it due to bad side effects so she does Yoga at least 5 days a week for an hr at a time and eats mostly oirganic . also sleep is the big key she tries for atleat 8 hrs it does not always work .

[JaniceSW]

I do not have it but my roommate does. she lives every day in pain. She is unable to take medicine for it due to bad side effects so she does Yoga at least 5 days a week for an hr at a time and eats mostly oirganic . also sleep is the big key she tries for atleat 8 hrs it does not always work .

You are right.  Sleep is important.  Sleep is healing.  Try to get 8 hours if you can.  Meditate, try music therapy, reading, aromatherapy, whatever relaxes you. 

In my previous post about exercise, I forgot to tell you that if nothing else, engage in a stretching routine.  It is very important.

[alice44]

Fortunately this is not something I have to deal with.  I can't imagine how I would cope with the disease.

[y2kpeaches]

It has been 8 days since I started the 1000mg of Turmeric Curcumin. I'm not where I'm comfortable but I'm not at that point the pain is eating away at my sanity.  I guess falling into the financial problem and no health care has given me a chance that I have prayed and hoped for since I realized I couldn't stop this in my mind only.  That is a natural way of handling the pain without the scary prescribed drugs. Don't get me wrong I have still been taking Aleeve but most days I can deal with just 2 or 3 pills,  not the 4 a day and still feel I'm going crazy with the pain.  Yee haw.  Now to just sustain it when out and about.  I have to be able to work and care for myself so I will keep believing and waiting for that day  😆
I want to thank everyone for participating in this forum blog.  It gives me something to look forward to on the daily. 
Also I hope for the day we can all have this peace in our mind and body!  ☺

[missplaymate618]

I have not been diagnosed with fibromyalgia but it's a possibility I have it. I am now doing a gluten free diet which I started last week. Haven't seen much change, still have the same symptoms but not as severe. I know this is a painful disease and I hope you all find some type of relief!

[y2kpeaches]

Well the last week and so have been extremely in so much pain. Most days are not so good. I hope to soon get to a doctor and get some professional help and prescription medicine to help. Good luck to all that reads this and may a cure or therapy find its way to each of us! Bless u all!

[Rahmanh]

Take thiamine and B vitamins to help your Fibromyalgia.

[y2kpeaches]

Just as I think things are going as planned here I am again in another fine mess. Well time to crawl out again and find another path.  Someday I sure hope to find that place in life that will allow me to become a perfect fit.  Pain and all 😆 Blessings to all followed with strength to get us through the harsh times to allow us much more joy and appreciation for the good days!

[y2kpeaches]

Take thiamine and B vitamins to help your Fibromyalgia.

Thanks for the info!  I have tried the vitamin B but found no relief.  I will try the thiamine with the B and alone to see if that can provide me with some relief. I know someday I will find a great medium. I have faith!  😆

[nannycoe1]

My legs are in constant pain because of PAD, hardening of the arteries. Nothing helps

[y2kpeaches]

My legs are in constant pain because of PAD, hardening of the arteries. Nothing helps

Is there any yoga positions that would help? I ask since I have a belt I keep in bed with me and when my legs get crazy acting and chewing at my brain, of course when I'm lying still and trying my hardest to go to sleep, I stretch my legs one at a time with some yoga positions I have found that help. Of course I would recommend talking to your doctor first as I know my Mom had issues with her legs and we had to be careful. But I sure hope you find something to relieve that pain. I'm in tears at most times with mine and I wouldn't want to wish this on my enemies.