fibromyalgia

[moonangel]

i have noticed that some people say that they have been to the doctor several times and the doctor doesnt know whats wrong with them .. i just mention this because my wife has fibromyagia and she also went to the doctors until they finally tested her for fibro if any one wants to talk with her about this condition she said she wont mind getting on here to help other people if any one needed it.

[sdenimandlace1]

That very nice of your wife to offer to help others. I'm sure some one will take her up on it.

[patycake56]

wow i know what that is ive had it for yrs

[moonangel]

she was finally diagnosed with it three years ago

[Storm61115]

my aunts have it bad. they take meds and take lots of hot baths. some need sleeping pills like my mom. i hope i dont get that bad. i already suffer from rls which sucks big time and it keeps me up at night alot. cant take anything coz i'm pregnant.

[loulizlee]

I have been to doctors who, because I have arthritis, refused to do a test for fibromyalgia.  They said they were sure I did not have it.  Then, about a year ago, I started seeing a rheumatologist, and he did the test and diagnosed fibromyalgia immediately.  I think most of us are aware of our bodies and how we feel, and we know when it is something more than arthritis.  By the way, I applaud your wife for being willing to help.

[moonangel]

she also has rls she ran out of meds for it and actually almo kicked me out of bed she like to say shes like a fish flopping around in dry land   anyway it makes her laugh thinking bout being a fish 

[bhiett]

I know people with fibromyalgia and my heart goes out to anyone with this condition.  It is finally being recognized by the medical community but apparently difficult to diagnose.  If anyone out there is having trouble getting approval for Medicaid assistance because of being unable to work due to fibromyalgia (and lack of convincing documentation by medical personnel), keep trying and go to specialists if necessary; this is a real medical condition.

[moonangel]

yes it was very hard to diagnose they told her that she had ra years ago its not to bad yet though but you would think thatif they could caatch ra then they should have been able to find out that she had fibro because being the spouseits very hard to whtch her go thru the kind of pain that she was having and on bad days can still alot of  pain

[blondie71]

i have noticed that some people say that they have been to the doctor several times and the doctor doesnt know whats wrong with them .. i just mention this because my wife has fibromyagia and she also went to the doctors until they finally tested her for fibro if any one wants to talk with her about this condition she said she wont mind getting on here to help other people if any one needed it.

I have been diagnosed with fibromyalgia since 1998 but from my understanding there is no blood test of that sort for the problem.  I have been trying to get my disability for 11 years through a lawyer, granted I have other problems to and now I was approved in home care.  Medicaid says I am disabled and now I am getting home care so why is social security giving me such a hard time.  I didn't even quit working until 2008 that because I was working with a company that provides in home care and I was afraid of dropping my clients and my supervisio said in order for me to keep my job I had to lift at least 100 pounds and my doctor said no more than 10lbs so I quit.

[TaintedLust]

I also have fibromyalgia as well as bulging In my spine. Due to only having a medical card I cannot seem to get help from any doctor. I get the run around or am sent to a specialist who does not accept my medical card. I'm trying to take care of a special needs 3 year old but It's tough. My doctor gave me 600 MG Gabapentin but they don't work. It's a challenge to even get out of bed In the morning.

[bessie1111]

I recently read that vitamin d helps those with fibromyalgia.

[moonangel]

No there is no blood test to tell if you have fibro like there is for RA.  They had to do a nerve conduction study.  This is where they put needles in certain areas in your body. I did not like it, it was very painful to me.  This test allowed them to rule out other possibilities like multiple sclerosis and other stuff like that.  I also have other health problems and became disabled thru a fall at my job.  It has been three years and i am still not thru with the SS disability system yet but almost. I have had my hearing with the judge and am waiting the the judges decision.  The disability system is incredibly backlogged here in kansas.  I wish you luck in your process.

[cloudsoup]

i have an aunt with fibromyalgia and i've always been
a little worried that i will get it (not sure if it's hereditary,
i've not really looked it up)... but i've always had tender
muscles. i've never been able to stand getting massages
from people unless they are very gentle in the shoulder
and back area...

i used to work at a physical therapy office and wrote many
evaluations for fibro patients. the symptoms are miles long!
i always felt so bad for them when they'd come in 

[MessiahMews]

Fibro is a multi-faceted condition.  When asked as to what causes it, the answer is just about EVERYTHING.

Poor bio-mechanics can lead to fibro, especially after a bad accident.  It seems that the C-1 Atlas vertebrae plays a huge part into it.  Fix the atlas and the nervous system comes back online.  Also NCR (neurocranial restructuring) helps many sufferers, because when the skull (head) is on straight, the entire spine unwinds and the structure changes.

Doctor Brice E. Vickery wrote many articles about how all fibro patients seem to have the same spinal degeneration going on because of protein deficiency.  He recommends a specialized amino acid formula called Platinum Plus amino acids.  You can do a search on that and get several pages.

Dr. William Wong talks about ischemic pain of fibro and he says that fibrosis contributes to it.  He wrote an article called "Fibrosis, The Enemy of Life.  He recommends systemic enzymes to eat up fibrosis, excess fibrin in the blood, and they decrease systemic inflammation.  The main enzyme is Serrapeptase.

Also low thyroid function plays a part in fibro.  The low body temperature syndrome also known as Wilson's thyroid syndrome has the same symptoms as fibro, particularly the chronic fatigue part of it.  Dr. Denis Wilson, MD seems to think that they're one in the same.  Also another doctor name Dr. John Lowe recommends T3 (thyroid hormone) to relieve fibro.  Which is basically what Dr Dennis Wilson recommends, the only difference being that Dr. Wilson recommends the timed release form made by a compounding pharmacy.

There is a foundation called The Keshe Foundation that has promising treatments and trials for fibro.  They reason to treat the body as a galaxy in their trails.  You will have to look that up and read the part under health.  They also call it a body reset.

And sometimes vaccines can cause fibro, as admitted in their package inserts under adverse reactions.  They call it just myalgia, but they admit it in the prescribing information.  A detox would in order.

And sometimes, the body just need to detox and be fed certain nutrients to recover.  Each individual is different.

Can find all this information in a google search or use the FC toolbar search.  It's all there.